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Special needs

Dad’s Role in Back to School Transition

As the summer swiftly winds down and families transition back into a school schedule, parents often settle into roles depending on their individual strengths and partnership style. Perhaps it is Lead Paperwork Organizer, Transportation Facilitator, Supply Coordinator, Head Chef, Morale Booster, or a combination of all the above!

Thinking about the roles we fulfill as part of family organization prompted me to reach out to Louis Mendoza at the WA State Fathers Network to learn more about a particular perspective: Dads! Louis had so many great things to share, so I wanted to share them with you as well. Here are some highlights from our conversation:

Jen: To start out, can you tell me a little bit about the Washington State Fathers Network?
Louis: Sure, the Father’s Network got started in 1978 and was actually an assignment to a couple of grad students at UW. It kept going as a network and later in 1985 they were looking for a new home and wound up at Kindering. At one point it was the National Fathers Network, and over time it shifted focus to Washington State. Now there are chapters all over the state, including Seattle, Bellevue, Bothell, Chelan, Spokane, and Everett. Basically the network connects fathers of children of any age with special health care needs with each other, and connects them to resources, information and education to assist them as they become more competent and compassionate caregivers for their children. The connection component is done by introducing dads to other dads through meetings, social events like camp-outs, pancake breakfasts, poker games, or a super bowl party. Some events are specifically for men and some for the whole family.If we have a father call for a specific need, we will help him with that need. Other times I send out information to dads that would be beneficial, like workshops or events. Recent examples include a soapbox derby race geared toward children with special health care needs, or local theaters and museums with low sensory events.
J: That sounds great! Why do you think there is a need for Dads groups, and particularly Dads with children who have special health care needs?
L: Each parent–mom or dad–brings their own strengths and perspectives, but some general things bring dads to the network. One of those is the issue of how they get support. Generally, between the mom and the dad, mom has a better social support network, and she more readily taps into it for emotional or logistical support. Dads don’t tend to have as strong of a network, and if they do they don’t tap into it for this purpose. So one issue is, how do we bring dads together so that they can talk to other dads who get what they are going through? Dads can tend to think of themselves as independent, strong, resilient, self-reliant. This can lead them to think that they don’t need support or maybe even to refuse it. Often times it’s the mom who realizes that the dad needs support and she encourages him to seek out help.Dads can also tend to see themselves as problem solvers, but the needs of their child are sometimes not something they can solve. They need to work through that to get to a point of understanding what can be addressed through things like education and therapy, and which things can’t or don’t need to be fixed–it’s just who their child is. Talking with dads who have been through this can help, especially if you are a new parent to a child with a new diagnosis.

J: Yes, that definitely sounds familiar. Are there common issues that come up with dads that you meet?
L: An issue that comes up for a lot of dads is the issue of being included in the life and care of their child. This is mentioned often in regards to education and medical institutions. It not only has to do with being invited to those meetings but also being intentionally included in the conversations and decisions that are being made. For example, in regards to school, dads can feel left out. If they’re not invited they need to insert themselves into the process. As the school year begins they should talk with and work with their partner about getting ready and organized for the school year, reviewing the Individualized Education Plan (IEP), discussing what the teacher needs to know about their child and being part of those conversations when they happen. It’s important, as much as possible, to be part of the whole process. It may not be  immediately evident, but the child really does benefit from dad being involved. In so doing, Dads are setting a nice example for their own and other families and educators. It sets the framework for being involved.

J: You wrote a great article that talks about that very issue. I like how you incorporate the family as a whole while recognizing some the unique needs of Dads. How did you get involved with the Fathers Network and Kindering?
L: I became familiar with Kindering when I was a para-educator in the Northshore school district. Some of my students went there, and I was introduced to the agency by a parent. I eventually served on board subcommittees, and when the former director, Greg Schell, retired I was approached for the position.

J: What is your favorite part of this work?
L: The thing that I really enjoy the most is the unexpected places and unexpected people that the job connects me with. For example, working with organizations that I didn’t know I’d have the opportunity to work with in order to advocate for dads and their children. Another example–one of the exciting things I’m working on right now–is bringing other dad organizations in Washington State together to work cooperatively to serve more dads and serve them better. These organizations include Dads Move, WA Dads, and DADS.

J: Thank you so much, Louis!
L: Thank you for the opportunity!

Visit the website fathersnetwork.org to learn about events, chapters, and other stuff happening in the network. Check out the upcoming WA State Fathers Network Conference: Raising Awareness to Empower Fathers. You can also join the mailing list for a monthly email update, and follow on the Fathers Network on Facebook.

Tags: Back to School   Dad   fathers   Fathers Network   special healthcare needs   Special needs   Washington state   

Wave your flag of inclusion with Family Support Coordinator Jen!

WithinReach podcast
You might remember Jen from her previous blog posts. As a Family Support Coordinator, Jen works directly with families to connect them with support and resources for children and teens with special health care needs. She graciously agreed to come on the WithinReach Podcast to talk about what it means to be a Family Support Coordinator, how she got to WithinReach, and how she sees the world of special needs and disability. Enjoy!

Don’t forget to check out the first episode of the WithinReach Podcast!

Tags: Child Development   inclusion   neurodiversity   Special needs   WithinReach Podcast   

Community connections for children with special health care needs

I have two children, both of whom occupy varying points on the autism spectrum (often depending on the day) with some other health issues thrown into the mix.  As they have grown, so have their amazing personalities; so have the challenges.  I suspect it is not all that different for parents of typically-developing children.  Community can be particularly important for families with children who present unique challenges (and skills!) beyond the usual antics.  However, for reasons from accessibility, to awareness, to stigma, those challenges/differences can be isolating.

Children and youth with special health care needs are those who have or are at risk for a chronic physical, developmental, behavioral, or emotional condition and who also require health and related services beyond what children generally require.  For example, a child who has a developmental disability such as Down syndrome, as well as asthma or allergies, would be considered to have a special health care need.  Another example might be someone with ADHD and diabetes.  In Washington State, an estimated 235,920 children and youth under age 18 have a special health care need – that is 15% of all youth.  Connection to health care, education, community, and family support are important factors in the quality of life for individuals with special health care needs and their families.

One important resource for children and families with a diagnosed or potential special health care need is Early Intervention, which is a system of services that can help infants and toddlers with disabilities or delays to learn key skills and catch up in their development.  For children from birth to age three, Washington State Early Intervention providers offer free developmental evaluations and support services like speech, physical, or behavior therapy.  These services “are designed to enable young children to be active, independent and successful participants in a variety of settings.”

In addition, Washington State has a robust and active family network of support when it comes to children and youth with special health care needs.  From Parent to Parent, to PAVE , to the Father’s Network, caregivers with personal experience navigating the emotional and logistic complexities of special health care needs are an important resource.  Whether you are just starting out on your journey, or have a question relating to a very specific diagnosis, chances are there is another family out there who has been down a similar path and can offer some experiential advice.

Raising children is hard and beautiful and humbling.  It is a deeply individual, personal experience while at the same time having the capacity to be incredibly unifying.  Parent and caregiver networks, supportive clinicians, and educational advocates have proved invaluable in my own journey to empower myself and my children to thrive and contribute as members of our local community.  Working at WithinReach, I have the opportunity to help other families thrive, too.

To find out if your child would benefit from early intervention, ask your primary care provider or call our specialists at the Family Health Hotline (1-800-322-2588). This statewide, toll-free number offers help in English, Spanish and other languages.

You can find out more about peer support networks by calling the Answers for Special Kids line at 1-800-322-2588 or by visiting www.ParentHelp123.org.

 

Tags: Autism   Child Development   Developmental Screening   Early Intervention   Family Health Hotline   ParentHelp123   Special needs   Washington state   

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